What to say- and a painful setback

I see spring making it’s way to me.  I feel the warm sun as the angles change. I think about sitting out in the heat. I hope for an active summer. I want that.

I have been very mute lately when it has come to my writing. I have been blocked. There has been so many things happening in my world that I have become so overwhelmed and the words that need to spill out won’t.

Some things I just cannot yet write about – they are just too personal. I have always hoped to be as authentic as I could be when it came to my writing but so many things I just cant speak about now. It seems that God continues to test my faith. Is it that? Or just random hard crap that is bound to happen in some part to most of us- maybe some of us get more challenges than others.  I don’t know but my faith remains steadfast though I do shake my fist sometimes and ask why?  I think God gets it.

Anyway so what do I say? Maybe today I will write about things I can write about and maybe at some point I will feel ready and able to write about some of the other stuff. And maybe the stuff I don’t write about that is blocking me will take a step aside to allow my words to flow.

There has been a shift somewhere deep inside me this last year or so.  Sometimes I wonder if it as a result of all the surgeries I have had- all that anesthesia to my brain. Maybe its the pain I deal with- but I feel different. Not horribly down, but down sometimes and flat other times and sometimes I feel like me but with shifted worldview. I even went to my doctor to see if I am depressed and according to the questionaire I am mildly depressed. So I was prescribed an anti-depressant. I don’t do well on Anti-d’s typically -but I was given one that is in a different class than other ones I have used. All of those were for anxiety and depression and none ever worked right or I got some nasty side effects from them.

Anyway I haven’t take the Anti-d yet. Thats because I am now taking some other new meds for pain. My pain has returned – this time likely because of a failed fat graft. I have learned they can fail- die- form cysts etc. This graft in particular was put in an area in my posterior axilla (back of armpit) where the hope was that the stem cells would work to rejuvenate radiation damaged tissue.  I felt that graft with my fingers right after surgery. I worried that it felt really big in there and it sat in an area where I have had quite a bit of pain. But for over three months I didn’t notice anything. The grafts under the scars were doing well and that graft in the axilla wasn’t a bother- until it was.

A few weeks ago, I had a weekend where I did so many things (because I was able to finally do things again)and I can’t tell what may have set off the fury under my arm. Unloading boxes into my new kitchen after our reno was completed, I did a little barn work, I did a little working out.  Whatever it was set off a fire if intense pain that seemed to worsen each day thereafter. I called my nerve surgeon and gave me prednisone in hopes that we could calm down whatever was acting up. Prednisone was an elixir like no other. But as soon as the pack was done back came the pain. Stabbing, burning, searing, aching- crappy pain. Oh and this time swelling too. It just wasn’t feeling right under my arm.

When my nerve surgeon saw me he ordered an ultrasound and blood work and he added antibiotics because of low grade fever and the swelling  – and he ordered an anti-inflammatory – but no prednisone.  I begged for prednisone – it helped so much. You can only have so much prednisone I am told. Nothing has worked as well as that prednisone pack – not even medical marijuana. But maybe I don’t take enough MJ-I don’t want to feel “high”. My surgeon suggested trying opiates if needed. I haven’t taken opiates in months and want to avoid them if possible. I just want prednisone- it is hard to believe it is more dangerous than opiates.

I am back to limited mobility once more. I see the plastic surgeon next week who did the actual grafting. He did confer with my nerve surgeon about my setback and did feel it likely is the graft causing the pain. He did say he can take it out- which means surgery of some sort.

So frustrating.

I keep thinking how can I make lemonade from this? Maybe tack on a facelift or some tweak while I am under? God knows I have aged a bazzilion years since this all has started. I deserve some tweak – fillers don’t cut it!  Well if nothing cosmetic can be done, perhaps he could add more grafts under the scars that were treated before- I was going to need another procedure anyway- but that involves liposuction and that has a longer recovery time. so we will see.

I am looking at this as a setback. Pop that graft out and hopefully that area that has been my most painful area since I began this pain crap will settle down so I can enjoy my summer.  I had been looking so forward to summer before this setback. I am trying to keep a positive attitude. Sometimes that isn’t so easy for me.

It is funny how pain can become such a focus when it is intense and when it is dialed back or gone you can so easily forget you had it. I have kept marching forward looking for things to ease my pain and understanding that those that try to help me are not always sure things will work- I am kind of a guinea pig I guess.  I just keep the faith.

So I sit here looking at the sun across my pastures and I wait for spring and the warmth. Our home renovation is finished with some minor tweaks here and there. I have an office and I have a kitchen that is so pretty I hate to soil it with cooking.  I remind myself that through hardships there are always blessings. I see them each day even if I don’t always acknowledge them. Lately, things have been hard for me and for my family.  I search for my words and for my authenticity. I will keep it as real as I can and maybe in time I will have more to say. Ill know what to say….















2 thoughts on “What to say- and a painful setback

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s