New Traditions

For the last too long to recall years I’ve thought of Thanksgiving as a holiday of tradition. When I was a kid we did the same thing every year on turkey day. We did a family thing. Whether it was a large gathering or small it was always with family.

My family changed over the years a lot. My parents divorced and there were step-parents and step family. There were some years I didn’t even see my mom. That’s for another post . And some years I had boyfriends and chose to spend my holiday with them.

Some years were fun and comforting other years the celebrations somber or even angry. But the permeating theme for me was family and friends gathering. And also food food food.

When my dad was married to his second wife we ate chicken as he hated turkey. But we still got out the good China and sat down and thanked God and got down to some good eating.

When I was in college the holidays became a game of driving from one parents gathering to another with a hopeful stop at some friends in between. But I actually liked this musical chairs and of course the multiple meals.

After I was married a few years we took over the hosting of Thanksgiving from my in laws. My husbands family is large. With six sons and their families often we had 25 or more at our home. We shared food duty. Everyone bringing something but it was a huge amount of work but for me it was pure joy. I had always wanted to be part of a large family.

So as luck would have it I married into this big family and as I said I took over hosting the family. And I loved it. About five years ago things changed as my in laws began their decline. My father in law had dementia and my mother in law suffered a fall she never really recovered from and neither of them could travel to my home to celebrate. So things changed.

Some years we brought the feast to them. Their house filled with family and food was eaten with my mother in law acquiescing control to others in her home and my father in law tidying up as we finished as his need to keep order was calming to him as his Dementia worsened and he eventually didn’t know who he was tidying up after.

And as those years progressed we began to take turns and go over separately. Each family visiting them alone for a bit but trying to overlap so we could see some of the others in the family. Sometimes a big bunch of us would still end up there and my in laws seemed to fare ok. I have so many pictures of us sitting on their sofa with them. I miss that.

Kevin’s big family was growing more with grandkids marrying and great grandkids being born. And those expanding families began new traditions of having their holidays with their new brood. It’s just what happens. But I miss them. Today I’ll miss all that chaos.

We lost Kevin’s parents recently and my dad as well though I didn’t see him on Thanksgiving typically but we always spoke. My mom now lives with us. With all the changes – especially with the loss of my mother in law – we are all figuring out what the holidays will look like now.

My family – my three teen kids- my mom – and Kevin and I – talked about what would be a fun new tradition for us. We decided we wanted to do the holidays at our new beach house.

We invited the extended family as our doors are always open but this year they are all trying on their new traditions as the beacons that brought us together are now gone.

Though I’m sad for all the losses -I’m really excited for this new way of celebrating. Since my last surgery I’ve been feeling better. I still have some pain that will hopefully improve but I’m able to cook again. I’m not cooking the meal! No. Bethany Blues – a great restaurant nearby- made the dinner. We began to order our holiday meals not long after I got cancer. Making the entire meal is too overwhelming – so I made desserts with my mom. We have one more pie to bake today. Then all I have to do is heat the meal up later. I actually like to cook and I’m thankful that I’m now able to do so but I just can’t physically make such a big feast -and frankly I like the ability to relax with family on the holiday. My kitchen duties are much less this way.

I will miss the big family gathering and we are now trying to make sure we all find some way at least once a year to try to get Kevin’s brothers and families together at some point. I suspect it’s going to be hard especially as the families expand but it’s important to try I think. I have one brother and it’s infinitely hard for us to get together. Getting six families together will be challenging.

I’ll miss seeing my mother in law. If she was still here we’d be going to see her today at her assisted living facility. But I know she was in pain and unhappy living there. She tried to make the best of it but I’m glad the Lord called her home to be at peace. But she won’t be out of my head today.

So here I am writing this at the beach house. Kevin and my daughter have left and are off to run in a Turkey Trot together. I don’t trot except for on a horse -and I think this is a nice father daughter tradition.

I think I’ll honor my dad today by spreading more of his ashes in my garden. I feel he’s a part of this house – a place he never has been but a place I would have never had if it weren’t for him.

I’ve found things can change so fast and we have to learn to ride the waves. I have had many changes in my life and seem to have managed to morph as needed. It’s not always easy. Many times I’ve dragged myself into the next iteration of life kicking and screaming. But this new way of being together over the holidays is exciting to me.

Tomorrow we will go to Lowe’s to pick up our new fake tree that we will set up here at the beach house and will decorate this weekend in preparation to have Christmas here. We will have a tree at home in Maryland too Just in case the weather strands us there. It’s all about being flexible.

So today I will be thankful for many things. Family and food and improving health. And I’ll be thankful for new traditions. It’s change that makes us grow. As my dad would have said “it will put hair on your chest” (for years I didn’t get that but I do now. My dad’s sayings – Lord I miss those!).

Happy Thanksgiving – with love from me.

Happy Birthday Dad


Today would have been my dad’s 82nd birthday. I still can’t believe he isn’t alive. He planned on living a long time. He never would have been ready to go I don’t think. In a way I’m glad his death was fast and he didn’t see it coming. Here then gone. 

I miss my dad and have grieved him plenty over this last tough year. I sometimes felt that I didn’t know how to navigate with him gone. It’s that loss of connection that leaves a hole.  That person I have never not known isn’t existent on this planet anymore. It’s still sometimes throws me for a loop. 

I think I’m to a point where I can sort through some of the boxes I was sent by my brother who went through his effects (aka stuff) and sent me things he thought I might want. That includes many photos. I have purchased albums for them and may sort through them in the fall. Some of his clothing was used to cushion the boxes and that was the hardest thing for me to deal with when I first opened the boxes. I’m not sure I’m ready for that yet. 

Grief needs to be felt in order to move on I think. I don’t enjoy it. I lost three people who were very important to me in a short time. It’s been rocky. But I see that the only healthy way is to trudge through it. But we all deal with grief in our own way. We let a little in at a time. Otherwise it’s like a landslide that can knock us over and cover us and keep us from moving at all. 

I think when we lose someone we feel like we are the only ones who feel that loss. It’s because grief is a personal thing. It’s lonely.  We can talk out our feelings some and sit with others feeling the loss as welll but -for me at least -grief is deeply personal. Some days it’s lonely. But with my dad’s loss I’m processing it and I’m moving forward. 

In a tough year I have been blessed as well. I went from needing to be in bed bc of severe chronic pain to being able to move again. That thanks to a surgeon who listened and cared. I’ve been able to buy a beach house for my family. That thanks to my brother who agreed to buy me out of my dads Florida condo (and it is on Marco Island and it did survive Hurricane Irma ). My kids are doing pretty well. All working and one in community college and the other two getting ready to apply. Things are good. 

Amidst grief and loss there is so much sadness but there is joy. Lately I’ve struggled some with my feelings about many things and I’ve gone to see a threpist that I really like. This a safe place where I can open up about conflicted feelings and just vent about the last four years and get it all out. It’s a process. 

I’m sitting on the beach as I wrote this.  Something my dad would have done today I’m sure. I’m looking at the Atlantic and he likely would have been looking at the Gulf of Mexico. But we both shared a huge love of the beach. 

I think about the up and downs of our relationship and the hurts. It was quite a ride. You always want your dad to get you and if doesn’t get you then he supports your dreams. My dad didn’t always get me. I think it was easier with him to relate to guys. He was a guys guy. 

When I began my love of baseball we had lots of conversations about our teams. It was a way to bond more with him. I’m glad for that added bonus of baseball becoming my go to sport. It helped when conversations became awkward or tense. 

I began the process of forgiving my dad years ago. We were always waxing and waning. I always wanted him to just see me for me. And maybe finally he did. 

He became enamored with my photography a couple years ago after I gave him a canvas of a little mountain called Sugarloaf that was near our home in Maryland. We hiked there a few times. I think he even went there alone sometimes. I’m so glad he thought I had talent. No matter your age most of us want our parents to be proud of us. 

There are many things about my dad I don’t know. He struggled with alcohol use and it seemed he was happiest when he was buzzed. Well maybe we all are. But he loved his alcohol too much and he would never admit that it had a hold on him and as he got older I decided maybe it didn’t really matter. Let him just have fun. 

And he did have fun. He had friends and he travelled. I’m so glad for that. He even married his long time love a few years ago. That didn’t end well and it’s not a story I choose to tell now. 

My dad is buried about 45 minutes from my home. In a Catholic cemetery- next to his second wife Jean.   She passed away from Cancer in 1994 at the age of 51. His first wife is my mom. She lives with me now. He definitely wanted to have a partner. I’m not sure he ever mastered being a great husband but I know he loved all of his spouses. I’ve found my dad loved people the best way he knew how. Don’t we all try to love the best way we know how? I think it’s never perfect because we aren’t God. 

Everyone has a story. I know my dads story is deeper than I’ll ever know here on earth. But as conflicted as our relationship could be at times I am so glad he was part of my life.  He was funny and charming. He cared and I know he loved me.

 Since he has been gone I come to see how much alike we really are. My impatience and tendcies toward moodiness and my quick temper are all him.  Though I don’t often show my temper like he could. 

My dad was as big as life itself. A huge precense when he was in a room not only in stature (he was 6’4″) but also in personality.  He was more outgoing than I am and he kept up with friends better than i did. Though I am trying to be better at that.

 Stan Wilson was something. And he was my dad. 

So I’m sitting here in the beach on a beautiful day on Sept 23 remembering my dad on his birthday. I thought I could get through this without tears. But I am not. And that is ok. I cry because I loved. 

Later today I will take some of his ashes and scatter them in the bay just near our beach cottage. I want to release him into the water which he so loved. Later when the gardens are done being put in at our cottage I will scatter some of his ashes there- so he is part of Cool Breeze Cottage. I can just hear him saying “Cool Breeze! Here comes Cool Breeze!”  My high school nickname -he loved nicknames. I hated that name then but now I have three teens and I so get it! 

So happy Birthday Dad. I’d like to think you are with loved ones -your dad, Nana, Jean , keenie. And Ernie , the haleys,and mr Deveraux, mr Vogelsinger and many more. 

Happy Birthday. Your daughter here on  earth misses you so much and will love you always. 

Little signs 

I have been so sad about the flooding in Texas. My brother lives in Austin. He had lots of rain and wind but no flooding. He is safe. His family is safe. But so many others are not. It’s really so sad we can’t put words to it. 

I’ve wanted to write this week but I wanted it so be something that might bring joy or a smile or warmth. So many people are suffering and don’t we suffer just a little when we see our fellow man in such peril? So I have a little story that will maybe bring you some joy -or you might shake your head and laugh. 

Because I got a sign. Not a sign but a SIGN!

The other day I was talking to my mother in law. She’s in heaven -or the great beyond. Whatever you want to call it. To me it’s heaven. We lost her just over a month ago. My heart still hurts and it will for a while -she was my good good friend for almost 20 years. 

Anyway I talk to her. I feel her so near to me. I can’t explain it. But maybe it’s the way she felt her husband near her after he passed away in 2015. She felt him in bed on his side next to her every night.  Oh and he made visits to us too. I’ve written about the time he was sitting watching kevin build our chicken coop. Kevin saw him out of the corner of his eye -twice. Dad would have loved being part of building that coop!  

So she’s gone and the hours long conversations on the phone are gone too. Often I’d talk to her then hang up and dial my mother. Those days are gone. But my mom lives here so the chats can continue in person.  But there is a hole left where mom sweeney once was. I feel her close but it’s not the same. 

So I talk. She’d want that.  The other day while I was talking to her I asked her to send me a sign she was ok. 

I said ” maybe you could put a white rose on my pink rose bush or put flowers where they wouldn’t really grow.”

I went on with my day and didn’t think about it again until a day or two later I saw this. 


This was a pot of weeds on my deck. I hadn’t planted in there in two or three years because my dogs would tear up the pot and eat the flowers. Last spring I pulled weeds out but weeds kept growing. This year a big stalk grew out of it and the boys removed that a month ago or more – and the pot was supposed to go into the big dumpster we have out front now as we clean things out from a basement flood and the junk that accumulates when three generations are living in a house. 

But now there are flowers in the pot! There weren’t any all summer. Just weeds. 

I take this as a sign. 

I’m not sure what others think but all I know is it brought me joy in a week with a lot of sad stuff going on. 

I’ll take it. 

Hope this made you smile or laugh – it’s all good. 

Meet Daisy (and duke)

Meet Daisy. She is my new beach cruiser.  When we bought our beach cottage this past spring I knew I wanted a bike. But I never really felt like I would be able to ride again because of the issues with the nerve damage on the right side of my body.  I kept telling Kevin we needed to wait to look at bikes until I felt better. The thing is I don’t know if this is as better as I am going until we do the next procedure which may be fat grafting. 

My arm and side tends to get all “burny” and achy feeling when I overdo. Ice packs are my friends. As are heading pads it depends on the moment. And I don’t know what overdo is. It varies -so I hold back on the things -like getting a bike. 

The other day kevin saw an older neighbor in our new beach neighborhoood  (we are like the babies in this neighborhood I am discovering !) and she was riding a three wheel bike. Kevin thought maybe I could try one of those to see if I could ride easily using just one arm. I thought -three wheels!? That’s a tricycle – but ok why not. I need to be open minded because I have a disability now and I want to adapt as best I can to be able to live life the best I can. So we planned to just go look at trikes. 

And if you are looking at the picture Daisy isn’t a trike. She’s a bike! Pretty as can be. 

We stopped at a bike store on route 1 as they were getting ready to close. We had to have our beach time and didn’t plan the timing too well but we lucked out and found an accommodating  store even though it was just about closing time. 

Two beautiful young woman were getting ready to take all the bikes set up in from t of the store inside. I could tell immediately they were Russian. The shore gets many young people that come over to work the summer shifts. I wanted to start my whole convo about how my kids are from Kazakhstan blah blah but I didn’t bc they were closing.  I don’t have those convos anymore now that my kids are older bc they are often with me and I think it’s their story to tell now. And they stay mute. But once in a while if they aren’t around I like to tell it but I had a bike to try so I stayed quiet. 

The manager of the shop a thirty something guy with a beard told us he didn’t have trikes at this location -bummer. I could tell he didn’t like the trikes. Why did I know this? Because he basically said so. I guess I wasnt too keen on them either  especially after he said how much space they took up in his small shop. I didn’t want big and heavy – having a bad arm doesn’t bode well for having to maneuver a big bike. 

I explained my plight – show me a cruiser with big long handle bars so I don’t have to reach far. And he did! There was an entire fleet of bikes I could choose from and I saw the yellow green cruiser with the white seat and I asked them to pull that one out. 

I had a long light sweater on over my bathing suit which I didn’t take off when I got on the bike -I was too excited -so I just held it up with my hands as I rode.  It must have made a pretty picture! 

The seat was so comfortable and it was so easy to peddle. I rode around the lot laughing and almost crying because the feeling of freedom was so immense. I can’t explain well but after being so sidlelined for so long the feeling of moving on the bike was amazing. It isn’t a horse but it’s something. 

Kevin turned to the manager and said “I will need a bike for me. She will be taking that one.”

I laughed and rode around and around. 

And Kevin bought Duke. Kevin is not sure about naming his bike but he’ll go with it. He is just that way. 

I love Daisy. And now she has Duke to spend her time with. He’s a good looking bike. A cruiser but manly in his build. 

We rode all over the neighborhood the first night. I was sore the next day and my arm hurt but I likely used it more than I should.  I can easily ride here with one arm.  My left arm is not my dominate so asking it to do more is awkward for me. The right arm wants to jump in and help. I’m learning my bounds. 

I sent my surgeon the photo of me with Daisy. I owe him so much thanks for getting me this far. I still have a ways to go but this is miles from where I was.  I did ask him if bikes are ok and I promised that I was not riding my horse. He responded with happiness at my ability to ride a bike and said bikes are ok. Horses not ok. 

Yet. 

But they will be. It’s a goal. 

But for now there is the freedom of riding Daisy. 

And for the ability to do that I’m very grateful. 


Duke

Doing the Mundane

You never appreciate doing boring laborious chores more than when you have been unable to do them for so long. For me my weekend was filled with fun everyday boring stuff and I’m so glad I was able to participate. I still had some pain but often forgot about it as I kept busy. I’m sore as heck even two days later. My muscles are still getting stronger after being laid up for so long. But I’m feeling good and I’m happy.

So let me bore you with my mundane weekend. For me it was not a bore. It was bliss. 

There was Friday night dinner out -with my mom and my hubby as my dates. 


On Saturday there was a little butterfly watching as we began to spread sand over the dirt and stone of our chicken enclosure. 


We worked. The boys shoveled over four yards of sand and since I still can’t shovel  (maybe I’ll be able to rake again someday!) I moved sand along with my feet and that proved to be a great workout. 

We had time for a little communing with the animals. 


And fixing a Rooster with bumblefoot. 

And I have to share Kevin with his new gas powered power washer. He loves it. 

And we did  a large amount of gardening. We created a lovely area. 



My work posse didn’t want their photo taken but I bribed them with ice cream. It pays to have an awesome ice cream shop minutes from our house! I am So very thankful that my two sons worked so hard all weekend with me and even did shifts at their “real” jobs.  

(Look how tall they have gotten!) 

And of course we communed some more. 


We sanded and gardened our way through the weekend. I spent it with two usually surly sixteen year olds but somehow they were gracious and hard working. Maybe they also got the brevity of the moment. I was doing normal things again. Maybe they didn’t get it. But I sure did -and as I worked I kept marveling at what a blessing it was to put my hands in dirt again and work with the animals.  This is a part of me I’ve missed -being able to do work -I couldn’t shovel at all or lift much-but I did use the hand trowel and planted some plants.  Yes I did a lot of pointing and telling people where I wanted stuff but I spread sand with my feet and tended to a hurt chicken. I groomed my horses and I sat and enjoyed being with them. There is much I can’t do still -but there is much I can do and thats the gift. And for that I’m so grateful. 

The Little House that Did. 

I’ve long said that your home is where your people are. I’ve moved enough times to know this to be true. That’s not to say I haven’t had some sentimental attachments to a house. I have. I have driven past homes that I’ve lived in and felt the little heart pulls. It’s not really for the bricks and mortar of the place – though I can remember the worn carpet places on the steps of my childhood home – it’s the memories the house represents.

I remember the green counters in Kevin and my’s first home we built together – a cute townhome in Germantown, MD. It was there we brought our first child home from Kazakhstan. It was there I became a mom at age 37. It was there where my life went from being so me oriented to being family oriented. Other people mattered. I began to grow up there.

It’s the memories these brick and mortar places hold. We can take the memories with us in our minds, hearts and photo books but there’s something so sweet when we drive by the old places.

I have some sad memories from some of my old childhood homes too but they represent places that shaped me in some way. So good memories flow with some not great ones. For me I see the swift passage of time when I see old photos of these homes or I drive by them.

For some reason lately that realization of the fast path that life takes has been weighing on me. So it’s not surprising that I have become overwhelmed by sentiment at the sale of my dear inlaws home.

My inlaws have owned that home for nearly 60 years. The little Aspen Hill neighborhood known as Harmony Hills has turned over and and over and over family after family-Kevin’s parents were among the few original owners left in the neighborhood- now one sees many little children running about as young families have moved in. It’s a working class neighborhood now. It’s close enough to the city to be in demand and their house sold quickly. I wasn’t surprised. .

But I was surprised at how sad I am about it.

The sale had to happen. My mother- in- law is in assisted living and we lost my father- in-law a little over a year ago. But their home – not house- their home is one place I have only good memories of. The many dinners with everyone crowded in the living room chatting after a good meal. Lots and lots of laughs. My kids playing with old metal cars or Legos in the basement. The “picnics” in the back yard, Easter egg hunts , gift exchanges and lots of love. It all existed in this house.


It’s hard to believe this little house raised six boys. My husband tells stories of knee football games on the lower level. Sometimes an adult voice would yell down to be quiet. There were sibling arguments too. Much expected with six boys.

That house held many diaper changes and bottles , then much sports gear, many class photos, then graduation pictures, then wedding photos, then grandkids and great grandkids. Those people in those photos have all stepped foot in that home. Thousands of meals were prepared by one of the most kind woman I have ever met. I can see how my mother-in-law might have had the patience to raise six boys. She was a mom to all who came through that home. She’s been a blessing to me and words cannot express how thankful I am for her. She got me through some hard days. She may not even know it. Sometimes  my phone would ring when I would be at my wits end with work or tired from being with my little kids all day and she would be on the line just checking in- and it was just what I needed at that moment. She never intruded, she never judged. She became my friend.

Once I asked if she ever got mad. I’ve never really seen her mad in the 20 years I’ve known her. Kevin -my husband-told me that a few times when he was young his mom got up from the dinner table while they were eating -said nothing – and went quietly into the bedroom and shut the door. I nod my head in understanding. She was overwhelmed with men. I picture the small flask being pulled out from under the mattress! Six boys. One husband. She had to have her moments. No wonder she made so much banana bread.  Baking was her solace. Her banana bread is talked about in many circles. It was that good.

.

Six boys raised by good people. Extremely good people. My father-in-law was maybe the fairest person I’ve ever met. He never told anyone what they should do. If you asked him his opinion on something he would tell you what he might do in a given situation but he never pushed anything on anyone else. He believed his sons needed to make their own way and learn from their mistakes. He was also generous. If someone needed a little help he would freely give what he could. This wasn’t a wealthy man but he was rich. He had so much more than money. He had wisdom and love.

Dad was quiet but I’m told that when friends of his sons came over they feared him! Apparently he had a look that made any kid snap to in an instant. Once he told a friend of the boys to move his car out of the driveway and the kid not only moved the car- he left entirely! He was gentle yet firm. I knew only the gentle man and gentleman.

The living room home to many gatherings.

 

 

 

 

 

 

 

Each person who has been in that home had a different memory and perspective of life there. What I know is that my life changed there. I became part of big family. Something I always dreamed of. And that family welcomed and accepted and loved me for who I am warts and all. I watched my children who came to us through adoption be loved and accepted without question. I saw them thrive in that love.

We laughed and we cried there.

That little house holds so many memories. And new memories will be built there by a new family.

Family visiting the house before closing.

If it’s walls could talk the stories it would tell. The one thing that that little house did was hold six boys that were raised to be wonderful men. Gentle men and gentlemen. Men that today make sure their almost 92 year old mom gets the best care possible.

Love full circle.

That’s what that little house did.

I will miss that little house.

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Surgery journal …it keeps on going 

So the last I left off – I think- is that I was slowly healing from my surgery. 

Recap – I had breast cancer surgery which led to pain for three years that was ignored by my breast surgeon. It exacerbated last May 2016. I was bed ridden. I had to begin a journey that would lead mye to a nerve surgeon that agreed that I may have a problem with surgical clips. This clip issue had been suggested to me by a physiatrist I saw over the summer.  Surgical clips are made of metals and are used often in surgeries to close of vessels. They have caused issues In patients but it’s not common or maybe not admitted by doctors that they are an -in fact- an issue. 

The nerve surgeon operated. Removed clips in my axilla (armpit) And he found some clipped onto nerves. Not the right thing to clip.  The nerve surgeon also cut some nerves and buried them into muscle. He removed a neuroma (bundles of scar tissue ). He was optimistic that he had cleared the area of clips and that these were likely the cause of much of my pain. He Closed me up and here I am just over three months later. 

Now I will say that I’m still in the process of healing. But I have had pain in the back of my armpit -it’s not new pain- I think my surgeon thought it was pain that would subside as he treated all that other stuff I mentioned to you above. That pain in the back of my armpit is becoming worse. And the symptom that bothered me the most -the nerve pain that made me cough -is still around and seems to flare when that armpit pain flares. Nobody gets the cough symptom. That is very frustrating.

Is it worse BC I’m more active and doing more things?  Well I’m not bed ridden anymore and I am doing more and the more I use my arm the more it hurts. I can’t work on my range of motion exercises much because it causes pain. And it hurts as a passenger in the car and when I drive. I tried a long ride to the beach a little over a week ago as a passenger and that about crushed me. I am not big on opiates so I’m only willing to take so much medication. It was a stressful trip to say the least. 

I went to see the nerve surgeon this week and he took a long time with me. He pondered my continued pain. He had some ideas of the nerves it could be. He hopes it can calm down and become a non-issue the longer I heal. 

So the plan is to get a series injections right in the areas of my pain. The injections contain lidocaine -a numbing agent -which is short acting and some steroid which we hope will calm the pain down. I get the next injections four weeks apart. I won’t know if this injection will help even for the short term for up to a week.  Then if  I still continue with pain a few months from now I will have to have more surgery. 

Yes I know. It bites. 

But I need to get this pain level under control so it doesn’t limit me so much. I’m limited socially and physically. I’m up and around which I’m so grateful for. But it’s not enough yet. My mom moved in with us at the end of November. I want to be there for her.  I don’t want to be dealing with my own pain issues that it limits me from helping her. 

I’m 75% better than last summer. Being bed ridden and now being up and around is a huge deal. A lot of the pain is gone. But what’s left is bad. If it weren’t for the pills for nerve pain I’d been in bad shape. I hardly ever tolerate any RX meds. I failed all the cancer hormone blocking drugs I’ve tried. I was very pessimistic about the drug neurontin also known as Gabapentin. It’s used to treat seizures but is very effective on nerve pain. Which is a hideous burning pain that can go from light burn to a blaze if left to smolder.  The drug has been great for me. I have little side effects. A few twitches here and there and memory loss. The memory loss is the worst of it for me. I put up with it because the pain control is that good. And the drug isn’t like an opiate. I’m just writing everything down and when I forget something at least I have something to blame it on. I have read coming off the drug is  tough. Not like coming off opiates but it can be hard. But I’ve read how to counteract any unpleasant side effects with natural products like magnesium – which can make the taper off the drug much better. But I’m not even there yet. I still need the drug -so in an unlike fashion for me I’m not going to worry about when I go off it. 

Nobody said that this healing would be easy. I think I just got in my head that it would be a done deal when all those clips came out.  I’m disappointed. But I’m so determined to get to a point where I won’t have so much pain. I don’t know if I’ll actually ever be pain free on my cancer side -but I’d like it to be much better.  And I’m not pain free elsewhere. It’s just that the level of pain that sets us back from true living can be different for each of us. And I met my match. 

The one good – well maybe great thing- that has happened is that from my experience I have been able to help other woman in the same pain situation as I am in ( post breast therapy pain syndrome). A couple woman have even gone to my surgeon after I mentioned him on the Facebook page that I belong to for ladies with post breast cancer therapy pain. 

It feels good that my hardships haven’t gone in vain and that my experience and what I’ve learned and shared could actually be help to others.  

I have a lot of things I want to do. I am so grateful for how far I’ve come. And I call upon God each day to help me to be more patient. I am doing the best I can.

I miss riding my horse. I miss farm chores. I don’t miss doing laundry though -I can do a bit of it but I try not to. This week we hired a cleaning service to come in and clean. It was much needed. We will probably hire them on a regular schedule. I just can’t keep up and my teens aren’t the best cleaners. And I’m kind of done with the eye rolling from them especially when I can’t pull my own weight doing chores. And frankly I don’t want it to be a fight. In the scheme of life it’s just not worth being mad at messy kids. Life’s too short. 

The road to recovery isn’t always a straight line. I’m learning to be more accepting of that. Right now I am better than last summer. I’m so grateful. 

I really am learning to live one day at a time. I don’t know how I’ll feel from day to day. So just focusing on today is the easiest for me. It’s forcing me to live more in the present. The theme to my last blog. 

I’m carried by the thank you’s I’ve gotten for sharing my experiences and hearing that what I’ve written has been empowering them has really be a saving grace. I’ve been carried by the good wishes of friends from all over. 

It’s not a road I’d wish on anyone. During my worst days I sometimes can’t find a thing to be joyful about. But I see that life happens no matter where I am or what I feel – and I want to live life. 

I orten  think of the Apostle Paul in the Bible and his unending optimism and want to call people to Christianity despite his circumstances. His letters never waivered in his goal and he never lamented on his circumstances though he was jailed when he wrote many of the letters that now are books in the New Testament. He found contentment in any circumstance. This was because of his love of other things outside of this earthly place and his faith of what lay ahead for him. 

Sometimes you have to try to enjoy life even when you aren’t where you want to be- whether that be physically or emotionally. I’m no Paul. But I can learn from him. 

This cancer journey has been such an incredible challenge in my life. It’s not easy for me to stop along the way and consider I need to be learning from my discomforts . I just want out of it. But in the moments where I can just stop and breathe and  just live in the present despite my discomfort I see how truly blessed I am. 

I don’t know where the road will lead but I’m on it – better to make the best of it when I can.