Updates – figuring things out

It has been a good while -yet again- since I have written on my blog. I am trying to find the time and motivation to write again. I guess the good news is that I am busy. Busy doing life. Which for a while I was sidelined from. So busy is really good news for me.

I am about 10 weeks post surgery. I am a few weeks post a great vacation that we took to Wilmington NC and Charleston SC. I am grateful that I was able to take the trip. I got in the truck for the drive down south and a pain flare began. I likely did way too much preparing for this trip. Packing was the the likely culprit that took me from feeling pretty well before we left to being in bad pain on the drive down.

I was pretty bummed out. My recovery from surgery had been promising. I was feeling well. My pain level was down. But what I had noticed was that things were backsliding some. Things in my surgical area felt tight. I had been told to massage my scars and that they would actually get softer in time. My nasty radiated scar is gone so that leaves me with three new scars but they aren’t radiation damaged scars. I wanted to be positive but it has been hard. I am four surgeries in trying to rid me of this post breast cancer therapy pain – so I get defeated sometimes when I feel the pain intensify.

In that truck on the way to Wilmington , NC – I took pain meds- I just had to because this trip was important. I wasn’t going to mess it up. Kevin and I needed to get away.  We are caring for my mother in our home. And she is a wonderful person but Kevin and I hadn’t been away alone much in the last few years – so it was time. And well it was also our 20th Wedding Anniversary. I wanted celebrate that milestone!

I felt a lot of pressure going into this trip. I planned it. I love planning and I was excited to see the areas we chose to visit. I will write more about that trip later but I will say it was a lovely time. But I felt this pressure to not mess it up because of my pain. So in that truck I  was so frustrated with this pain flare. We cut a trip short last fall because of my pain and I was so disappointed. I really wanted to be able to take this trip and not have to cut it short. We were to be away for a week.

I was supposed to begin PT when I got home…another thing I was skeptical of because I hadn’t found any PT that ever helped me. So as we were driving I took out my Ipad and began searching for some type of PT therapy that might be designed for either breaking up scar tissue or for cancer pain in general.

One search led to another and I ended up finding a PT group near my home that performs a type of rehab therapy for cancer patients called ReVital.  I have been going now for a couple weeks. And the therapy group I am seeing near me is really great. I knew from the first visit they knew what they were doing. The therapist asked all the right questions. She knew about radiation damage and issues due to chemo. They work on breaking down scar tissue and are trying to stretch muscles and tendons in my arm that are damaged by radiation and were also made immobile due to frozen shoulder – I also had that after the cancer treatments.

PT is not without pain but the first day the therapist told me straight. If I don’t get this arm moving I am just going to get worse. So here I am going diligently to PT. The fact that horrible scar is gone is allowing me to do more than I would have been able to do if I still had it. So I am ever so thankful to Dr. Del Corral for removing it.

I feel hopeful for the first time in a good while. I know I will probably flare again (and I had a flare the first day of PT and when I left that flare was gone so that really gave me hope). I know there are steps forward and steps back. But I have been fighting for almost three years to get my life back. To feel normal.

Yesterday I drove my mom to her haircut appointment and while she was there I ran to the hardware store and to the grocery. I ran into a friend in the grocery and we chatted for a few minutes. I hurried through my shopping so I could get back to get my mom. It sounds so normal to people reading this I am sure –  but for me it is huge. Just to be able to drive and to have that freedom is so great. And Maybe some of you know this but I have had anxiety for years and shopping alone isn’t easy for me and for a long time I never did it. And now I am doing just that. I am trying so hard to just live life. Normal stuff is good.

So on that trip down south I didn’t know what I was getting into when I booked an appointment for PT. But sitting in the truck I felt like maybe it might be good. Just keep moving forward. That is always in my head. When we got to Wilmington I told myself I was going to enjoy our darn vacation. I was not sitting around! I was going to see stuff. And Kevin – as always- said he would do whatever I needed to do. There was no pressure from him…it was me pushing me.

So the ice pack became my good friend.  I toted it under my arm for much of the trip. Anti- inflam meds were needed daily and a few days into the Charleston leg of our trip I realized I was feeling much better – we had eaten and shopped our way through that city – and we had clocked some walking miles on that trip. It was very good.

All I can say is thank God for ice packs and thank God for the wonderful husband I married 20 years ago in April 1999. I often still cannot imagine my luck.

I am so grateful for being able to do normal things. I am grateful for a PT group that gets my pain situation.

And as my dad would have said- “Keep the nose of the plane up Anne” – I am trying Dad  – I really am.

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Southern Mansion South of Broad Charleston SC

Clearing my mind

The last few days I’ve felt a growing sense of anxiety. So much to do. Worrying about things I can’t control. And worrying about things I can.

Will I be able to physically do the things I need to get done? I am hoping so. A visit to my surgeon a few weeks ago ended with him draining another couple cyst like things from my axilla and giving me a nice big steroid injection and so far I have had some relief. Still I can’t do many things I once could. And still I push to do as many things as I can. So much I leave in others hands. That’s hard for me too.

I think the issue is also mental. I forget so many things. I get overwhelmed and I get mad that I forget things. I forget to check my calendar and my notes app where I write so many things.

Today the cell phone repair guy showed up around 1pm. I had completely forgotten he was coming. I hadn’t even checked the calendar and I had put something else as a priority. Thankfully we were home. He came for my sons broken phone screen but if we hadn’t been home he likely wouldn’t have heard the door. Well anyway that worked out.

Other days I don’t get so lucky and one thing or another is forgotten or lost or a new fire shows up that needs to be put out ASAP.

My mind needs a break.

Yesterday wasn’t rainy – as so many days here seem to be. It was breezy and cold but sunny so I took off to walk on the lane to clear my mind.

It takes me half the walk to stop thinking about all the crap that I need to get done. I stop along the way and take photos. I listen to the shifting breeze. I listen to the quiet. I play some Coldplay on my phone for a bit.

I brought my dog Rudy and I watch him Focusing himself on the walk at hand. The smells and eating gross things. He just is in the moment.

And finally so am I. I feel the angst leave even if for just a while. My spirit lifted.

I have more energy for the day. And more patience. I feel happiness. I get a lot done.

Why -I think to myself – don’t I just get out and get into the natural world every morning. I need so habit. Something that centers me. Otherwise the day gets away from me.

My thoughts are not like they once were. They used to be in order – do this and then this and then that. Now they can start anywhere. It’s the difference between a straight line drawn on a board with a few blips, and squiggles drawn all over the board. My mind is squiggles. Maybe this is the meds I take , aging , a result of all the surgeries I’ve had to have over the last few years – who knows.

Anyway Clearing my mind helps get the line straighter.

It’s just a matter of making that a priority.

Doing the Mundane

You never appreciate doing boring laborious chores more than when you have been unable to do them for so long. For me my weekend was filled with fun everyday boring stuff and I’m so glad I was able to participate. I still had some pain but often forgot about it as I kept busy. I’m sore as heck even two days later. My muscles are still getting stronger after being laid up for so long. But I’m feeling good and I’m happy.

So let me bore you with my mundane weekend. For me it was not a bore. It was bliss. 

There was Friday night dinner out -with my mom and my hubby as my dates. 


On Saturday there was a little butterfly watching as we began to spread sand over the dirt and stone of our chicken enclosure. 


We worked. The boys shoveled over four yards of sand and since I still can’t shovel  (maybe I’ll be able to rake again someday!) I moved sand along with my feet and that proved to be a great workout. 

We had time for a little communing with the animals. 


And fixing a Rooster with bumblefoot. 

And I have to share Kevin with his new gas powered power washer. He loves it. 

And we did  a large amount of gardening. We created a lovely area. 



My work posse didn’t want their photo taken but I bribed them with ice cream. It pays to have an awesome ice cream shop minutes from our house! I am So very thankful that my two sons worked so hard all weekend with me and even did shifts at their “real” jobs.  

(Look how tall they have gotten!) 

And of course we communed some more. 


We sanded and gardened our way through the weekend. I spent it with two usually surly sixteen year olds but somehow they were gracious and hard working. Maybe they also got the brevity of the moment. I was doing normal things again. Maybe they didn’t get it. But I sure did -and as I worked I kept marveling at what a blessing it was to put my hands in dirt again and work with the animals.  This is a part of me I’ve missed -being able to do work -I couldn’t shovel at all or lift much-but I did use the hand trowel and planted some plants.  Yes I did a lot of pointing and telling people where I wanted stuff but I spread sand with my feet and tended to a hurt chicken. I groomed my horses and I sat and enjoyed being with them. There is much I can’t do still -but there is much I can do and thats the gift. And for that I’m so grateful. 

Thoughts on busy-ness

Whew long time no post. I actually wrote this post a week ago but didn’t have time to edit it- how apropos to the topic of this post! —

Kevin, my husband, and I were chatting recently and he said something that made me think.

“When I talk with people I rarely ever tell them anymore that I’ve been busy because it seems like everyone is busy and my being busy isn’t more important than there busy ”

Well…wow – that’s true I thought to myself. Then I began to do a self check  as I do when someone says something very smart -do I push my business out there in convos I asked myself-and by goodness gosh I do. Because I’m freaking busy. Like so busy that I forget all the stuff I did in a day and sometimes even become paralyzed with all the stuff I need to do. I’m so busy that I’m taking time to write this in the car in a traffic jam inYork PA as we drive back from helping my mom because when I get home I’ll be too busy or tired to write. But Kevin’s is right we are ALL busy and my busy does not trump your busy.

I need to stop putting my busy in other people’s face.  Unless I want to vent a little. Venting feels good.

So now I wonder am I busier or has middle age just made me more aware and less resilient than when I was young?

When I was young I could get up and head to work after being out late the night before – I could work a full day and then go home walk my dog and head to the gym and maybe even go out again to meet some friends.I used to drive back and forth to the beach in a day -I baked in the sun in-between.  I took night classes for my MBA after work. I never got an MBA -I got married and then things got super busy.

Why do I feel so much more busy now? Perhaps it’s because I have others to worry about -kids, husband, aging parents. I manage their schedules, I worry about their health, their grades,college possibilities(I have a whole other post just about that), I drive people around. And I work. It’s insane and maybe my menopausal brain can’t process it all as well as my younger brain could.

I’m in the the middle of life- middle age. Nobody warns you that being in the middle isn’t only the sagging body and wrinkles that seem to come overnight. We are often caring for growing children and caring for aging parents. We often work full time while juggling the other stuff. Nobody warns you how that can keep you up at night and super busy during the day.

But isn’t our world just busier overall? Or is just my view of it that has changed?

Middle age, oldster, youngster.  We are all busy. My own daughter works two afternoons a week and one day on the weekend while going to cosmetology school while she still taking her high school courses.  She is busy. I don’t remember being that busy as a teen.

Sometimes I think the technology that I love so much makes us that much busier BC we have so many things that can be done right at our fingertips. Just take the app Yelp. Awesome app. But if I want to find a restaurant near where I am or going I can just look on the app but lo and behold the app shows me lots of restaurant choices and then I need to read all the reviews. In the olden days I may have asked a friend for a recommendation or I may have just stopped at a place that looked good. Now I get out the app and check how many stars a place has. I leave nothing to chance and I spend lots more time making sure I choose just the right restaurant. I love (many emoji hearts) my smartphone but you get what I am saying -yes?

Let’s face it, we all are on the busy train going somewhere. Until we aren’t.

Sometime in our lives we might actually miss the busy because we can’t physically get on that train anymore. I have been derailed a time or two temporarily. When I had cancer and was getting treatment life as I knew it kind of stopped. I had to limit my focus on my health and my family and my recovery. Other stuff had to take the back seat.  I began to miss the things that I had fretted about before. I saw things in a different way. That being busy may be stressful but being unable to be busy is also stressful.  As I recovered I was so happy that I began to have the endurance to be busy. I thought I would be able to temper my busy with my new look on life that having a serious illness can give a person. But no – I seemed to have jumped back on that busy train – it can suck us in so fast.

There needs to be a balance – I suppose- and I look hard to find it. I do know that when I get overloaded with things my mind sometimes goes inert. I become unable to do anything unless I break each thing down into smaller tasks. Or I delegate something to someone else. Maybe this is a good thing. This inertia. It at least gets me to realize I need a break.

Busy isn’t going to stop I am afraid. So maybe there is a way to enjoy it whilst in the middle of it.

All of us need to take some time to unplug and breathe. Spend time with the family if you aren’t so sick of them BC you’ve been driving them all over or picking up after their messy selves. Read a good book. Or binge watch a show. I know that is not unplugged in its true sense but for me it’s a distraction from my own crowded mind. And there are so many great shows to watch- yes?

I even try to meditate but thats a work in progress for me. I have read how good that is for cancer survivors and I maybe a good way to still my mind. Oddly, for the months that after I completed my cancer treatments I was able to sit still for long periods and just be. Maybe this is as close to good meditation that I will ever get. Time would go by and I would just be sitting…sometimes at the end of the bed and other times at my desk. I would lose track of time and an hour would be gone. It was rather strange. Unfortunately this was during a time that i was frustrated that I could not tolerate busy at all. I was tired out from the treatments and I became depressed as well. Which is not uncommon after cancer treatments I have since found out.  I would become tired and overwhelmed after doing just a few things. So my ability to just drift into some zone wasn’t as much as a blessing to me as a curse back then. Sometimes now if I am tired i can get into that zone- but again I lament about wasting time and not getting things done.

I am sure some of this sounds familiar especially to women.  We want balance and when we go to take a breather – we often feel guilty.  I am trying to learn my limits and allow myself to take some time out of the busy. I actually appreciate the busy more when I give myself that break.  Right now I am finishing this post sitting in my mothers sunroom. Its so quiet. I hear the faint sound of traffic outside and my golden’s soft snores. I came for an overnight with my husband to check on my mom but these visits have also become a welcome break from the home-front for a day. I can get a moment to breathe and then go back recharged to my busy life.

I really want to appreciate my moments even the busy ones because I have the opportunity to be busy.

So I’ll try not to tell you how busy I’ve been unless I need to vent once in a while.

My busy doesn’t trump your busy and really now that I’ve written all this stuff about busy – I realize busy isn’t bad at all. Being busy can be a gift. We just need some balance.