Live your life

Dealing with “Stuff”

This past weekend I went to my 40th high school reunion.  This post isn’t really about the reunion really, but being there brought up some “stuff” for me.  And the stuff it brought up is not new to me. The stuff this time was dreaded social anxiety, dreaded “I don’t belong” syndrome. I think when these things happen we have an opportunity to look at it and grow from it or at least try to become more accepting of ourselves. and

First off I will mention that this was the first high school reunion I went to in.. well ..40 years. I know we had a number of them over the years. I had friends go and ask me to come and I never felt I could. My severe generalized anxiety just kept me away. Sadly it limited me a lot in my life and I had to push myself to do things that are everyday doings for most people. Like going to the store or picking up your kid from the bus stop or school.

 So I was happy that this was not such an issue for me this time around. My anxiety is dialed back some…either because of my age and menopause or maybe because of the meds I take for nerve pain – they are sometimes prescribed to help anxiety. I am not sure but I am able to go and do more these days – and when one of my very best friends- Debbi-  who I met in high school said she was up for going I said I was in. 

I have this recurring issue with social anxiety. Some people may not see that in me because I don’t present as anxious. I can chat away. But sometimes I just babble on…and this is because I am super nervous and just keep on going. I over compensate for my anxiousness. 

I can’t do more than one social interaction in a weekend. I need down-time.  I often deal with post event social anxiety – where I awaken at night and worry what dumb thing I might have said to this person or that. Then, I need to decompress  for a couple days just to feel “normal’ again.  Typically this issue does not include meetings with close friends because I know they get me and love me warts and all so I feel blessed I can spend infinite time -well ok not infinite –  that’s a stretch-but the time I spend with them is not in a heightened state of angst. 

I did not go into this event without some nerves. Debbi told me we could stay as long as I felt like it. We could leave anytime. That’s a friend who gets you – and accepts you. My husband also agreed to go to this event – God love him. He said “I am in this with you!”  He gets it because he experiences the some anxiety issues too. I am glad he decided to go to this with me. It is like you just know your honey and your good friends have your back. 

It was awesome seeing Debbi and Rick again and all in all it was a nice event- even with the rain. There was an old beautiful barn  – with music being inside played by various members of our class. There was a tent outside and best of all decent porta-potties. I mean for women this is appreciated! 

I caught up with some old friends. Some people knew me,  some didn’t remember who I was,   and vice versa (my memory isn’t great these days). I must admit I did take some liquid courage from a can of sparkling rose’.  It helped some but I could not shake the overall and familiar  feeling of awkwardness. Later in the day I found myself wandering alone and I walked into the barn and people were engrossed in convo’s or watching the band and I felt all of a sudden like I did back in high school…where do I fit in here? It was an amplified version of the feeling I have had much of my life when it comes to new friendships and social situations. 

It was really off-putting for me. Nobody wronged me during this event. People were just catching up with people.  I met new people and a cool dog..and a cow or two. This was my thing. My issue. I even saw a few people I thought I might know and I hesitated to go say hello. I appreciated an old neighbor who came over and chatted with me for a while. It was nice catching up.  Why did I begin that negative story that I don’t fit in? Why can’t I just flick the switch and feel more comfortable in my own skin? If only it were a simple flick of the switch!  

 I wonder if I am the only one who felt this way that day – or other times – when I feel like I rather talk to the dogs then have to make small talk with people. I think I am not alone in this- but when you are feeling it you feel like you are standing in a room in your underwear and all are looking at you laughing.  

After the event- that night I woke with my normal post social anxiety angst. Did I say the wrong thing? Can I ever fit in with people?  It sucks waking with these thoughts popping into my head! Pop pop pop – stop it. Shut up brain – it is 2AM!

Our high school years are a pivotal time so being with old classmates was bound to be kind of intense for me. A little PTSD maybe? My high school years weren’t those one would write about as glory days. Very severe family drama perpetuated much of my life then. A bad divorce between my parents and an alcoholic parent didn’t lay the best backdrop to the rest of what can be a hard time in our growth.  So it is probably not shocking that these feelings came up this past weekend.

Why is it so hard to rewrite this narrative? Why do I continue to deal with these issues? Is some of it just past stuff that I have deal with over and over and over again to learn from each time? Is there really the ability to fix this? Will I ever stop questioning my value as a friend, co-worker, or classmate? I am not sure. I can tell you it is hard for me to make friends with new people. And the less you put yourself out there the easier it is to not put yourself out there. Covid hasn’t helped. This for me is an ongoing process I think. A story that won’t end until I end my time here in this world. 

I think what I did realize is that we never rid ourselves of the younger versions of us. I have always hoped that my social anxiety and awkwardness would go away.  And I will say as I have gotten older I have stopped caring as much of what people think of me (hey that is why I can write about this) and my ability to face social situations is better but that nervous feeling just won’t go away. Some people are more comfortable in their skin I suppose. But we all have something. We all got stuff going on.

On Saturday I saw the young 17 year old Anne  make an appearance…well not see but I felt her in there. She came up to the forefront…she was shaking in her boots. She brought me back to a time that had many good things but also many bad. She deserved a hug not a chastising. So I gave that to her, I let her feel her feels. And I gave her the space to just be. She is loved and she has her people. She is love. She is me…I am her. We are one. I accept her.

As for the reunion it was nice. I don’t regret going even though I suffered some. In fact, I am proud of myself for going out of my comfort zone. I think it helps with growth and acceptance. And I got to spend time with my bff of many years. That in itself was worth the experience.

And I got to meet young Anne again and remind her she matters and no matter what stuff we carry we are worthy…she is, I am…you are…. 

Sometimes things work out…

All I can say is we just never know where we are going to end up. We have no real control over anything. All we can do is make plans and have hope that things will be okay. For  the last two years  the one thing I had wanted so much to do was to ride my horse again. It wasn’t  a lofty goal really but one that seemed to be unattainable to me not long ago. I didn’t want to give up the hope that one day I would ride again…..but for a while it was iffy…

Two years ago I thought I would never be able to do many activities again let alone ride a horse. My only goal then was trying to find someone to fix the pain I was in. That was a battle unto itself but I did not want to give up- because to do so left me in a very dire situation. One that I could not accept.

June 2016 was a start of an intense pain drama that was caused by breast cancer treatments. The pain had been an issue since my surgery in October of 2013. I had sought help for it with no luck and then it really  reared its ugly head in May 2016 leaving me bedridden for much of the next year. It was hell trying to find the a doctor who would listen to me and not send me away with a shake of the head. They either had no idea what was wrong with me or they thought I was nuts. But finally I found a surgeon who listened.

Today, three surgeries later. I am not that woman stuck all day and night in bed anymore- but I still live in chronic pain. But the levels I am managing- and there may be more surgery in my future. I am left with a disabled arm that I cant use fully and overuse causes pain. Sometimes I don’t know what that overuse is. But I just try to dance with it- sometimes I am in the lead and sometimes the pain is.

I have been hell bent on doing more living- I have always been a physically active person and I missed the mental boost such activity gave me. So many things I could not do. Some because of the limits of my arm and some activities were contra-indicated by my surgeon- one being horse back riding. It was a total bummer to hear this but I temporarily shelved that disappointment and sought another activity .  I bought a kayak with pedals so I could go out in the bay near our beach house. The feeling of independence being on the water propelling myself was intense and important in my recovery. I bought a bike. I began to walk more. I can do limited exercises in the gym.  But I was really missing the one activity I was told not to do—ride my horse.

In the summer of 2017 I was still in enough pain that I was not sure I could ride and on enough drugs I was not sure I should ride. But one day that summer  on a whim Kevin and I tacked up my horse Harley . He accepted the saddle and bridle so well  that I decided to get on and have Kevin lead me around the dry lot. I knew the surgeon had not been keen on my riding but I wanted to be in the saddle. It was just a pony ride but it was the kick I needed – I set a firm goal – I would  ride my horse again. But there were still obstacles to overcome.

I didn’t think it would take another year before I was able to ride again. I had another surgery in November of 2017 to hopefully further reduce my pain. I would say the result have been pretty good. I am off opiates but still need nerve pain medications. . I have pain flares more often than I would like. But I am doing more. The surgery itself – which was fat grafting -had a longer than expected recovery time.

Every time I went to see my nerve surgeon – Dr. Williams- I would tell him that I wanted to ride my horse.  HIs concern was that my arm would be yanked forward if the horse pulled the reins forward suddenly- and this does happen. This can cause more damage to my arm. Also there is the risk of falling off but I think in my case the real concern was with the yanking of my arm. So I wanted to rectify that. How to keep that from happening. There had to be a way . Maybe I would ride one armed. I began to look into that as an option.

Then sometime this past spring my farrier came. I was telling her my plan to try ride again. I explained my concerns of riding with two arms and one getting yanked and I was also becoming nervous about not being strong enough to ride using only one arm (my horse is also neck reined) if my horse pulled suddenly. She told me to get a Daisy Rein. I had no idea what they were but it turns out they are used often for young riders. The rein hooks onto the saddle and also to the bridle and that keep the horse from pulling his head down. Maybe it would work for this old rider!

I saw my surgeon again in July and explained how much I wanted to ride and told him about the rein. He never did give me his blessing but he told me if I did ride I needed to send him photos after I was safely off.  So that to me was an ok to go ahead.

My plan was to move slowly into riding my horse Harley beginning in early August- but life threw us a loop as we suddenly  lost Harleys companion a- our beloved Arab mare -Airy to colic. It was a tough loss on all of us and I again shelved trying to ride. This time more for Harley than for me. I knew it was a stressful time for a horse when there are changes like that adding me riding him after such a long time off might add to the stress – and we wanted another companion for Harley so the focus shifted on that. It took some time but we now have Hank and Yukon here. Hank belongs to our neighbor and Yukon is our Guardian horse form a local rescue.

One  day a few weeks ago  I went out to the barn to feed the horses and our neighbor was bringing Hank back from a ride. I began to feel that envy. That yearning to ride my horse. I really felt it was now or never so I began to get Harley tacked up. It is a bit of a chore for me to get it on while trying to limit the use of my arm but I was able to do it with Kevins help.

Before long I told Kevin I wanted another pony ride. I have to use a step to mount now to get on- it allows me to not use my arm too much.  I got up and settled – feet in stirrups and I was holding both reins because we put the daisy rein on to give that a try too. He tolerated it well and best of all it worked! He couldn’t pull very far so no yanking of my arm.  After a bit, I asked Kevin to let me go and and I took a deep breathe in and let it out and off I went.  I maneuvered Harley around the dry lot for a while..at a walk.. nothing fast. He did very well – and we then called it a day. Best to end on a good note when working with a horse. And I was not ready to ride in the fields yet. But it didn’t take much time for me to be ready! So much for slow starts.

Since that day I have ridden twice out in the fields. The last time – this past Saturday- I was able to tack up on my own. I have learned to yank the saddle out of my locker with one arm and I can toss it up on his back with one arm too.  It was very freeing to be able to do this on my own.

I also can ride with one arm so I switch from using two hands on the reins to one. It turns out my arms are in a “safe” position so I don’t think I will get a pain flare if I am careful – but again it is that dance i mentioned above. That day I was in the lead. Dismounting is a bit of a challenge. I now lower the stirrup iron and dismount on the  right which is the opposite side we proper English riders are taught to do.

Obstacles aside I can’t begin to explain the mental effect being able to ride again gives me. It is something I have needed. It didn’t feel like it had been two years since I had ridden solo. It was as if no time went by at all. I felt right at home in the saddle. I am so lucky to have the horse that I have. Some horses may have been too much for me after not being ridden for so long. Harley is a true champ. We have a bond.

My goal is to ride twice a week for now. I will have to be flexible on this as well as I live my life around things we have planned – social visits, traveling, and doctors visits. So I often curb any physical exercise for a couple days prior to doing these things because I don’t want to have a flare up of pain which may require me to cancel the plans.

But that is life as I live it now. I accept it. You just never know where you will end up…right now for me I ended up back in the saddle. How lucky I am….

….And Dr Williams has been sent a photo..with more to come…

Happy Birthday Dad


Today would have been my dad’s 82nd birthday. I still can’t believe he isn’t alive. He planned on living a long time. He never would have been ready to go I don’t think. In a way I’m glad his death was fast and he didn’t see it coming. Here then gone. 

I miss my dad and have grieved him plenty over this last tough year. I sometimes felt that I didn’t know how to navigate with him gone. It’s that loss of connection that leaves a hole.  That person I have never not known isn’t existent on this planet anymore. It’s still sometimes throws me for a loop. 

I think I’m to a point where I can sort through some of the boxes I was sent by my brother who went through his effects (aka stuff) and sent me things he thought I might want. That includes many photos. I have purchased albums for them and may sort through them in the fall. Some of his clothing was used to cushion the boxes and that was the hardest thing for me to deal with when I first opened the boxes. I’m not sure I’m ready for that yet. 

Grief needs to be felt in order to move on I think. I don’t enjoy it. I lost three people who were very important to me in a short time. It’s been rocky. But I see that the only healthy way is to trudge through it. But we all deal with grief in our own way. We let a little in at a time. Otherwise it’s like a landslide that can knock us over and cover us and keep us from moving at all. 

I think when we lose someone we feel like we are the only ones who feel that loss. It’s because grief is a personal thing. It’s lonely.  We can talk out our feelings some and sit with others feeling the loss as welll but -for me at least -grief is deeply personal. Some days it’s lonely. But with my dad’s loss I’m processing it and I’m moving forward. 

In a tough year I have been blessed as well. I went from needing to be in bed bc of severe chronic pain to being able to move again. That thanks to a surgeon who listened and cared. I’ve been able to buy a beach house for my family. That thanks to my brother who agreed to buy me out of my dads Florida condo (and it is on Marco Island and it did survive Hurricane Irma ). My kids are doing pretty well. All working and one in community college and the other two getting ready to apply. Things are good. 

Amidst grief and loss there is so much sadness but there is joy. Lately I’ve struggled some with my feelings about many things and I’ve gone to see a threpist that I really like. This a safe place where I can open up about conflicted feelings and just vent about the last four years and get it all out. It’s a process. 

I’m sitting on the beach as I wrote this.  Something my dad would have done today I’m sure. I’m looking at the Atlantic and he likely would have been looking at the Gulf of Mexico. But we both shared a huge love of the beach. 

I think about the up and downs of our relationship and the hurts. It was quite a ride. You always want your dad to get you and if doesn’t get you then he supports your dreams. My dad didn’t always get me. I think it was easier with him to relate to guys. He was a guys guy. 

When I began my love of baseball we had lots of conversations about our teams. It was a way to bond more with him. I’m glad for that added bonus of baseball becoming my go to sport. It helped when conversations became awkward or tense. 

I began the process of forgiving my dad years ago. We were always waxing and waning. I always wanted him to just see me for me. And maybe finally he did. 

He became enamored with my photography a couple years ago after I gave him a canvas of a little mountain called Sugarloaf that was near our home in Maryland. We hiked there a few times. I think he even went there alone sometimes. I’m so glad he thought I had talent. No matter your age most of us want our parents to be proud of us. 

There are many things about my dad I don’t know. He struggled with alcohol use and it seemed he was happiest when he was buzzed. Well maybe we all are. But he loved his alcohol too much and he would never admit that it had a hold on him and as he got older I decided maybe it didn’t really matter. Let him just have fun. 

And he did have fun. He had friends and he travelled. I’m so glad for that. He even married his long time love a few years ago. That didn’t end well and it’s not a story I choose to tell now. 

My dad is buried about 45 minutes from my home. In a Catholic cemetery- next to his second wife Jean.   She passed away from Cancer in 1994 at the age of 51. His first wife is my mom. She lives with me now. He definitely wanted to have a partner. I’m not sure he ever mastered being a great husband but I know he loved all of his spouses. I’ve found my dad loved people the best way he knew how. Don’t we all try to love the best way we know how? I think it’s never perfect because we aren’t God. 

Everyone has a story. I know my dads story is deeper than I’ll ever know here on earth. But as conflicted as our relationship could be at times I am so glad he was part of my life.  He was funny and charming. He cared and I know he loved me.

 Since he has been gone I come to see how much alike we really are. My impatience and tendcies toward moodiness and my quick temper are all him.  Though I don’t often show my temper like he could. 

My dad was as big as life itself. A huge precense when he was in a room not only in stature (he was 6’4″) but also in personality.  He was more outgoing than I am and he kept up with friends better than i did. Though I am trying to be better at that.

 Stan Wilson was something. And he was my dad. 

So I’m sitting here in the beach on a beautiful day on Sept 23 remembering my dad on his birthday. I thought I could get through this without tears. But I am not. And that is ok. I cry because I loved. 

Later today I will take some of his ashes and scatter them in the bay just near our beach cottage. I want to release him into the water which he so loved. Later when the gardens are done being put in at our cottage I will scatter some of his ashes there- so he is part of Cool Breeze Cottage. I can just hear him saying “Cool Breeze! Here comes Cool Breeze!”  My high school nickname -he loved nicknames. I hated that name then but now I have three teens and I so get it! 

So happy Birthday Dad. I’d like to think you are with loved ones -your dad, Nana, Jean , keenie. And Ernie , the haleys,and mr Deveraux, mr Vogelsinger and many more. 

Happy Birthday. Your daughter here on  earth misses you so much and will love you always. 

Finding new roads or currents 

The thought I might never ride a horse again had crossed my mind from time to time this last year. I am pretty sure my own horses don’t really mind that-but it has been hard for me to concede to that fact that my riding days are over. So I’m not really going there yet. But right now I am not supposed to ride a horse. Not only my horse – any horse – no can ride.  This has to do with the fact I have had two major nerve surgeries on my arm and chest wall and a fall off a horse would definitely not be good for me.  

Had I known my riding days were limited I would have ridden more when I had the chance.  There really isn’t any sense in those regrets but that is how I feel much of the time. 

I am a very active person or I was. Since laying in bed with chronic pain for many months I am basically starting all over trying to get myself back into shape. It’s not easy when you have physical limitations and chronic pain. 

I have a whole list of can’t do’s:

  • Can’t ride a horse. 
  • Can’t lift weights with upper body. 
  • Can’t bear weight on my right side using arm. 
  • Can’t paddle anything. Like a kayak or stand-up paddle board. 
  • And you get my drift. 

So I’ve been trying to figure out what I can physically do because focusing on what I can’t do is just depressing and not productive.  And there are many more things I can do than can’t. 

So far I can

  • Walk. 
  • Ride a bike 
  • Ride in the front seat of car again. 
  • Drive a car
  • I can lift weights with my lower body 
  • I can feed animals 
  • I can brush animals with my good arm. 
  • You get the picture. 

The fact I want to ride a horse again is a good sign anyway. The fact that I can’t -for now – is just a hinderance. 

With our traveling back and forth to our beach cottage I’ve been trying to figure out what I could do for activity on the water. Kevin and the kids got stand up paddleboards and they are so cool! I can sit on one while Kevin paddles and that’s fun. We got a two man inflatable kayak and that’s fun too – but I have been just a passenger bc I can’t paddle it. Passengering is ok. It’s fun sometimes – but I don’t want to be the passenger all the time. 

I thought there must be a water device that has pedals.  So I looked up kayaks with pedals and they exist! I found out fisherman use them as it makes it easier to maneuver while fishing.  

So we found a kayak outfitter in Lewes ,DE about 40 minutes from our cottage. We worked with one of the salesmen and he gave us the lowdown on different types of pedal kayaks. We selected a Hobie kayak. The price was fairly high (I may have gasped) but I really wanted independence. I wanted an “I Can” that I could do with my family on the water and I wanted something that gave me independence like the bike did. The price was worth it. 

The feeling of being on the water is amazing. I love the serenity and the exercise. 

I love the freedom and independence. 

I’m glad I found another “I can”

——

Link to the paddle sport shop Facebook page where they posted our picture. 

Here’s some info about the Hobie Mirage kayak I got. 

I’m a child 

I remember sitting in a therapy group years ago. It was well before I was going for myself. I always went in the hopes I could find ways to change other people in my life that I thought needed changing. I wasn’t ready to change me. I was fine. 

In that group I learned about The Inner Child.  Back then Author John Bradshaws ideas of finding the inner child and healing the inner child were big in therapy groups. 

That group was BIG into healing the inner child. We had to get up and speak to our inner child. I hated that.  I was there to fix someone else. I was fine. Yes my dad drank. Yes he had anger issues and yes I grew up in a dysfunctional family but my inner child was fun. I was there to fix a guy. A guy I was dating. 

I still recall the house where we met. It was a funky cottage in an older section of Bethesda, Maryland. Not far from the Potomac river. It was an eclectic neighborhood. And the house vibe wasnt what I would have expected for a therapist but the room with its area to sit in a circle on the floor with pillows lent itself to comfort and a safeness. But when we had to talk to our inner child I thought they were all nuts. I only attended two or three sessions. During the last one I attended a woman a little older than me decided to put it out there for me -she said that I needed to stop and look at myself and ask myself why I wanted to date such people that didn’t want to commit to a full relationship. It wasn’t him it was me that needed to change. 

I was taken aback and left that night never to return. I wasn’t the one who needed to change. It was him. 

I was only 24 or 25 years old. I wasn’t there yet. I was so immature. I didn’t see what the others saw. But good for me to seek therapy. Good for my mother who herself went to therapy over the years even when people made fun of those who sought such help. She taught me not to question therapy it was just something one did like go to the dentist. I saw no stigma.

I just wasn’t ready to search inside myself. 

As the years progressed I went to a number of therapists. Some didn’t jibe with me so I left treatment. Othees worked out well for me and I stayed with them for years. My last one -Barbara-who we (my entire family ) saw died of Colon cancer. I still miss her and haven’t found anyone since that was a good fit for me. But i will. 

But before Barbara there was Claudia. She might even read this as we are Facebook friends. Claudia. She was my therapist right before and a then after I married. She was the perfect therapist for me at the time. She got me to work on me. She wasn’t a Bradshaw enthusiast I don’t think though I’m sure we did work on my inner child in many non-direct ways -like in regression therapy. 

Claudia and I talked, she did Reiki, tap therapy (as I was dealing with terrible anxiety) , hypnosis and more.  She was a kind and caring person. She championed me and I’ll never forget her. 

She made me see my inner self and my inner child. She helped me realize that I was a good person and I deserved good things.  Though I still struggle with that sometimes. 

But I came to realize we never really grow up all the way. And the most evolved humans are the ones who embrace their inner child and spend time healing any brokenness or trauma that child encountered.

 And It’s fun to act child like sometimes. The other day my BFF from childhood -Eileen-sent me a text and in that text she wrote something that made me belly laugh. It hurt too since I’m recovering from surgery! But it’s good to let that child shine through sometimes.  We go back almost 50 years. That’s a lot of lifetime but we still can snicker like the teens we once were. 

My husband gets together with high school friends and they go on and act like they are still 17. It’s a good thing I’ve known a couple of them for almost as long as he has or the jabs and old stories and theimmature  behavior might get old -but I can join in some bc I have old stories with some of them -though I forget many of them but our friend Terry has us doubled over much of the time. That’s the kids in us. Those connnextions are a blessing.  

Tom Atkins wrote a poem about picking a honeysuckle and tasting its nectar and how it brought him back to his childhood. I love the poem be when I read it I felt it. I was picking honeysuckle as a girl and then later with my little kids.  When I read that prom it warmed me ane I felt that child inside me giggle. 

So all these years later I’ve come to know my inner child and I’ve worked on her. I’ve know when I go to therapy I go to help me not another person. 

Little Anne is in there and she has healed a lot over the years because I worked on both of us. We still have a ways to go. I still have a lot to figure out.  

A couple weeks ago I was perusing one of the local online yard sale pages and I saw this Barbie dollhouse. (See below). It came with the furniture and car. My heart jumped. I wanted it. My innner child jumped out and sang “get me that dollhouse”.  I had one as a child though these have evolved and are even better than before.  But I remember seeing that dollhouse under the Christmas tree one Christmas morning many years ago. I still remember how I felt. 

I have no room for such a thing and no reason to buy it- except for the way it makes me feel. Like a kid again. And that’s a good thing. 

I didnt buy it. But I saved the picture. I hope it goes to little girl who will someday when she’s middle aged look at a picture of a dollhouse and feel the way I felt when I saw it. 

I’ve come to love my inner child. For a long time she was hurt and she was ignored. And that hurt child helped facilitate some bad choices bc she was hurt. But Now we are one. I’m am and adult and I am a child and we love dollhouses. 


Screenshot Photo cred: Facebook yard sale site. 
More about the inner child in this great article: 

https://www.psychologytoday.com/blog/evil-deeds/200806/essential-secrets-psychotherapy-the-inner-child

Surgery journal …it keeps on going 

So the last I left off – I think- is that I was slowly healing from my surgery. 

Recap – I had breast cancer surgery which led to pain for three years that was ignored by my breast surgeon. It exacerbated last May 2016. I was bed ridden. I had to begin a journey that would lead mye to a nerve surgeon that agreed that I may have a problem with surgical clips. This clip issue had been suggested to me by a physiatrist I saw over the summer.  Surgical clips are made of metals and are used often in surgeries to close of vessels. They have caused issues In patients but it’s not common or maybe not admitted by doctors that they are an -in fact- an issue. 

The nerve surgeon operated. Removed clips in my axilla (armpit) And he found some clipped onto nerves. Not the right thing to clip.  The nerve surgeon also cut some nerves and buried them into muscle. He removed a neuroma (bundles of scar tissue ). He was optimistic that he had cleared the area of clips and that these were likely the cause of much of my pain. He Closed me up and here I am just over three months later. 

Now I will say that I’m still in the process of healing. But I have had pain in the back of my armpit -it’s not new pain- I think my surgeon thought it was pain that would subside as he treated all that other stuff I mentioned to you above. That pain in the back of my armpit is becoming worse. And the symptom that bothered me the most -the nerve pain that made me cough -is still around and seems to flare when that armpit pain flares. Nobody gets the cough symptom. That is very frustrating.

Is it worse BC I’m more active and doing more things?  Well I’m not bed ridden anymore and I am doing more and the more I use my arm the more it hurts. I can’t work on my range of motion exercises much because it causes pain. And it hurts as a passenger in the car and when I drive. I tried a long ride to the beach a little over a week ago as a passenger and that about crushed me. I am not big on opiates so I’m only willing to take so much medication. It was a stressful trip to say the least. 

I went to see the nerve surgeon this week and he took a long time with me. He pondered my continued pain. He had some ideas of the nerves it could be. He hopes it can calm down and become a non-issue the longer I heal. 

So the plan is to get a series injections right in the areas of my pain. The injections contain lidocaine -a numbing agent -which is short acting and some steroid which we hope will calm the pain down. I get the next injections four weeks apart. I won’t know if this injection will help even for the short term for up to a week.  Then if  I still continue with pain a few months from now I will have to have more surgery. 

Yes I know. It bites. 

But I need to get this pain level under control so it doesn’t limit me so much. I’m limited socially and physically. I’m up and around which I’m so grateful for. But it’s not enough yet. My mom moved in with us at the end of November. I want to be there for her.  I don’t want to be dealing with my own pain issues that it limits me from helping her. 

I’m 75% better than last summer. Being bed ridden and now being up and around is a huge deal. A lot of the pain is gone. But what’s left is bad. If it weren’t for the pills for nerve pain I’d been in bad shape. I hardly ever tolerate any RX meds. I failed all the cancer hormone blocking drugs I’ve tried. I was very pessimistic about the drug neurontin also known as Gabapentin. It’s used to treat seizures but is very effective on nerve pain. Which is a hideous burning pain that can go from light burn to a blaze if left to smolder.  The drug has been great for me. I have little side effects. A few twitches here and there and memory loss. The memory loss is the worst of it for me. I put up with it because the pain control is that good. And the drug isn’t like an opiate. I’m just writing everything down and when I forget something at least I have something to blame it on. I have read coming off the drug is  tough. Not like coming off opiates but it can be hard. But I’ve read how to counteract any unpleasant side effects with natural products like magnesium – which can make the taper off the drug much better. But I’m not even there yet. I still need the drug -so in an unlike fashion for me I’m not going to worry about when I go off it. 

Nobody said that this healing would be easy. I think I just got in my head that it would be a done deal when all those clips came out.  I’m disappointed. But I’m so determined to get to a point where I won’t have so much pain. I don’t know if I’ll actually ever be pain free on my cancer side -but I’d like it to be much better.  And I’m not pain free elsewhere. It’s just that the level of pain that sets us back from true living can be different for each of us. And I met my match. 

The one good – well maybe great thing- that has happened is that from my experience I have been able to help other woman in the same pain situation as I am in ( post breast therapy pain syndrome). A couple woman have even gone to my surgeon after I mentioned him on the Facebook page that I belong to for ladies with post breast cancer therapy pain. 

It feels good that my hardships haven’t gone in vain and that my experience and what I’ve learned and shared could actually be help to others.  

I have a lot of things I want to do. I am so grateful for how far I’ve come. And I call upon God each day to help me to be more patient. I am doing the best I can.

I miss riding my horse. I miss farm chores. I don’t miss doing laundry though -I can do a bit of it but I try not to. This week we hired a cleaning service to come in and clean. It was much needed. We will probably hire them on a regular schedule. I just can’t keep up and my teens aren’t the best cleaners. And I’m kind of done with the eye rolling from them especially when I can’t pull my own weight doing chores. And frankly I don’t want it to be a fight. In the scheme of life it’s just not worth being mad at messy kids. Life’s too short. 

The road to recovery isn’t always a straight line. I’m learning to be more accepting of that. Right now I am better than last summer. I’m so grateful. 

I really am learning to live one day at a time. I don’t know how I’ll feel from day to day. So just focusing on today is the easiest for me. It’s forcing me to live more in the present. The theme to my last blog. 

I’m carried by the thank you’s I’ve gotten for sharing my experiences and hearing that what I’ve written has been empowering them has really be a saving grace. I’ve been carried by the good wishes of friends from all over. 

It’s not a road I’d wish on anyone. During my worst days I sometimes can’t find a thing to be joyful about. But I see that life happens no matter where I am or what I feel – and I want to live life. 

I orten  think of the Apostle Paul in the Bible and his unending optimism and want to call people to Christianity despite his circumstances. His letters never waivered in his goal and he never lamented on his circumstances though he was jailed when he wrote many of the letters that now are books in the New Testament. He found contentment in any circumstance. This was because of his love of other things outside of this earthly place and his faith of what lay ahead for him. 

Sometimes you have to try to enjoy life even when you aren’t where you want to be- whether that be physically or emotionally. I’m no Paul. But I can learn from him. 

This cancer journey has been such an incredible challenge in my life. It’s not easy for me to stop along the way and consider I need to be learning from my discomforts . I just want out of it. But in the moments where I can just stop and breathe and  just live in the present despite my discomfort I see how truly blessed I am. 

I don’t know where the road will lead but I’m on it – better to make the best of it when I can. 

The day after..life goes on. 

I woke up today not knowing the results of the election and Kevin had to give me the news. I begged him not to but he felt I better hear it from him than on social media. He knows I’ve been through a lot lately. 

This is certainly not how I thought the election would go. I didn’t vote. I firmly felt I could not vote when so much hate was being spewed around this election. And in the end my state went blue. That was expected 

But this election outcome is not the outcome I expected. 

And I will say neither candidate floated my boat but one worried me much more and he won.  But lets see – looking at my life the last three years and all that’s happened just in my own personal space – I shouldn’t be shocked. If something I think should be right side up turns upside down it shouldn’t shock me anymore. But this election outcome kind of does. 

Well what do I do with this? 

Live.  I’ll live.  

And yes I’ll allow myself to think of the fastest way across the boarder if things get really crazy. I will try to will myself not to worry over the stock markets and housing markets as they react to this news. 

People wanted change – I guess – and they got it. And I’ll hope that the ranting Trump realizes as he awoke today (if he slept) what a freaking important job he just got. Maybe he can put the ego aside some( I would have said this about Clinton too) and keep his hands to himself (I would not have said this about mrs C -but well yes I would said this about her hubby) and get down to doing a great job of being President. Maybe dial the personality back some  (Some people would insert -the crazy -here but I won’t.) and remember the entire world is watching -the places we like and the ones we don’t. He needs to know that he now represents more than himself. He represents us. He needs to keep his head about him and learn to think before he acts. 

I want to stay away from social media today but I’m sure I won’t.  Kevin told me people have posted all kinds of things. “Racism won” was one thing he told me before I asked him to not tell me that stuff right at that moment BC I hadn’t even had breakfast. Because I’m not even going to engage in any of that. Why feed into it the frenzy -it will die down.  I hope. 

I have my worries. I would’ve said this about Clinton too. Its just that my set of worries for Trump are little more scary than my worries were for Clinton . 

And I am bummed we didn’t get our first woman President -but we will. The fact that Hilary Clinton was possibly going to be the first woman prez and it wasn’t part of the in your face marketing campaign during the election says to me that we don’t think it’s a big deal anymore we just expect it to be something that will happen. Just like now we will never be shocked if a person of color runs and wins. Our younger generation has high expectations for woman –they don’t seem to see boundaries where other generations of woman did- and I hope in this next election in four years that we will see more woman seek the nomination.  

I chatted  with a friend on the phone this morning and she was not a Trump supporter and when I saw her name pop up on my phone  I thought she was calling to lament about it -we never really have talked politics -we have been friends for almost 50 years our connection transcends that of politics – but I thought she must be calling to lament bc I assumed she must be so upset. But she didn’t jump into that topic until well into the conversation when I mentioned it and she just said “ugh”.  She had other things of concern to chat with me about – she had already gotten on with her life. 

So there’s no point for me to lament or get upset about the gloating or feed into the negativity that I’m sure to see on social media.  I have so many other fish to fry. (Now I’m hungry for fish and chips).  I just need to live my life.  

That not to say the Presidency isn’t a big deal. It is-but all I can do is pray that Trump will cool his jets some and listen to his advisors who I also hope are really really really good. Maybe he will put his daughter Ivanka in some position. She carries so much class I can hardly believe she his kid. And BC she is, I hope that maybe he has a better side than we have seen. And I am praying that this is the side that will be brought out when he realizes that this is for real -that he’s the freaking President of the United States. He needs to act Presidential. He needs to make decisions for all of us not just the choices he likes at the moment. And I certainly will pray that he leads from place of care and love and not a place of hate. (And I would also have said the same if Clinton had won. )

I realized after chatting with my friend that the sun doesn’t rise and set focusing on this one thing. In a few days this news will be old news. If anything we Americans have short attention spans. And we have lives to live. We have so many shows to binge watch. 

I’m praying for a lot of good things to come out of this very hateful election. Maybe that’s crazy but that what I do. 

 But ultimately I’m going to just go live my life. And I’ll definitely keep my sense of humor because I’ve found that it comes in handy when under duress. And I’ve still got my eyes on the fastest way to the borders – the ones without the potential walls -and I’ll make sure one of the big cars has a full gas tank at all times. 

Life goes on.